Oh our poor sweet Conley, say prayers for her (and me!)! The "angel kisses" on her head and eye are actually hemangiomas that have started to raise up over the last week. They are much darker and larger than when she was first born. Since we saw Dr. Radimecky last week for their 2 week appointment, they have gotten worse, and the one in her eye started to concern me. Over the last few days, she is unable to completely open her eye. It looks so sad! I took her back in Wednesday for him to look at it again. He was immediately concerned. He said we need to have an opthamologist look at it to see about maybe even removing it, because if it blocks her pupil, it will affect her vision and probably cause her to have a lazy eye. He is also concerned about the one on her head and how deep it may go. We have an appointment with the opthamologist tomorrow at 7:30 am at Cook Children's in Hurst. They are also setting up a CT scan for the one on her head, and they will call me with that appointment time once that is setup. He said that the one on her eye would probably have to be removed with a laser since hemangiomas bleed so much. As much as I hate the way that they look on her sweet face and head, I wish that they were able to just be left alone. I feel bad that she might have to have them removed. I just hope that they can decide with confidence one way or the other, and if they do choose to remove them, I hope that they are very safe procedures. I also read that sometimes they shrink them using steroid injections. Of course, I want them to do whatever is necessary for her well-being in the long-term, but she is just so small right now. It's so sad and scary for me to think about her having to go through any of this, but it's also sad and scary to think about what it is doing to her eye. I'm thankful that we are having it looked at so early. I hope that we find out as much as possible tomorrow, and that with confidence they can decide on a plan of action that we can move forward with soon. I also pray that it is something that will be as least invasive for her and will have an easy recovery.
Here are pictures of her eye at 2 weeks and then again today at 3 weeks. This past week it has gotten so much worse, so quickly.
Beautiful girls at 2 weeks - eyes wide opened
Beautiful Conley at 2 weeks
Sweet, beautiful Conley at 3 weeks
Dear Lord, please protect our sweet and precious Conley Kate and give me strength to be the best Mommy for her right now and to do what is best for her. Thank you God for all of our beautiful girls!

3 comments:
Praying for Conley!
Hi Missy. I don't know you personally, but I'm a friend/old coworker of Joyce's (Audra). My son Josh is about 3 weeks older than Campbell, and my daughter Morgan is 1 week older than your beautiful girls. Please know that I've been keeping track of you and the babies through Joyce and your blog and have been praying for y'all. Glad that you we able to carry the babies longer and had good deliveries. I just wanted to let you know I'll be praying for Conley. I also wanted to let you know that my best friend's nephew had a hemangioma (sp?) on his nose when he was a baby. They were concerned with his breathing, but eventually chose to leave it alone, and it eventually faded and went away. He is 12 now, and there is no trace. Don't know if that's any reassurance, but thought I might share. God is so good...I know that Conley will be fine. God Bless! Audra Taliaferro
Hi Missy,
I don't know if you remember me, but I'm a childhood neighbor of Matt's and you and I were in the same BSF group 3 or 4 years ago.
I've kept up with your pregnancy and babies through Jennifer W. and Tina on Facebook. I just wanted to offer you some resources I found very helpful when my daughter was diagnosed with a lip hemangioma at 2 weeks.
We saw a great doctor in Dallas that specializes in Vascular birthmarks. His name is John Burns and his website is http://kidsplastsurg.com/ I've also heard great things about Dr. Jay Burns at the same office.
Also, there is an online community, http://www.msnvb.org/, that has great support and advice.
I'm praying for your sweet baby.
Jill (Lewis) Boyd
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